I wanted to highlight a research foundation that I’ve been doing some work for at the studio, The Sanfilippo Children’s Research Foundation. Sanfilippo syndrome (also known as Mucopolysaccharidosis or MCP) is a genetic disorder that affects the body’s ability to break down sugars, resulting in a buildup of heparin sulfate in various organs in the body. It affects normal development, with wide ranging symptoms. Individuals with Sanfilippo syndrome usually live into their late teens.
Elisa Linton was diagnosed with the syndrome in 1999, and her parents Randall and Elisabeth decided they would dedicate their lives to raising awareness and funds to find a cure. To date, they have raised over three million dollars for research.
As a parent myself, it touched me deeply to hear of Elisa and her battle with MCP. It’s heart-wrenching to know that the disease doesn’t manifest itself until age two, and so amazing to see how Randall and Elisabeth have responded.
I had the privilege of working on a short video for the Foundation’s upcoming fundraising gala. When it’s finished, I hope to be able to share it here. As you can see, it’s a Dr. Seuss themed gala, and the video is the story of Elisa, told in the style of a Dr. Seuss story. The story was written by Tracy Keenan, and I recorded the voiceover in the studio. For the musical score, I was able to enlist the help of my colleague and friend Howard Baer, an amazing and talented composer, who agreed to orchestrate and score the video. Both he and I felt compelled to donate our time to this worthy cause.
To find out more about the foundation, please go to www.alifeforelisa.org, where you can find out more about Elisa, the foundation, and Sanfilippo Syndrome. Thanks!